Representation of marginalised populations in digital surveillance for notifiable conditions in Australia: a systematic review

Author:

Dias-Karunaratne N1,Whop L2,Ward J3,Vujovich-Dunn C4,Amin J5,Dakiniewich A1,Dyda A6ORCID

Affiliation:

1. School of Public Health, The University of Queensland, Brisbane, QLD, Australia

2. National Centre for Aboriginal and Torres Strait Islander Wellbeing Research, Australian National University, Canberra, ACT, Australia

3. Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD, Australia

4. The Kirby Institute, University of New South Wales, Sydney, NSW, Australia

5. Department of Health Science, Macquarie University, Sydney, NSW, Australia

6. School of Public Health, The University of Queensland, 288 Herston Road, Herston, Brisbane, QLD 4072, Australia

Abstract

Aim: This study aims to establish whether digital surveillance methods for notifiable diseases in Australia collect and report data in relation to marginalised populations. Methods: The literature was systematically reviewed to identify primary research studies published between January 2005 and July 2023. Studies were included if they described an Australian digital surveillance system for notifiable conditions. The results were synthesised with a focus on evaluating the collection and reporting of data in relation to marginalised populations. Results: A total of 13 articles reporting on seven surveillance systems were identified. Influenza and adverse events following immunisation were the two most common notifiable conditions monitored. A total of six surveillance systems encompassing 16 articles reported information on sub-populations. Of these, three surveillance systems (nine articles) included data on marginalised populations. Conclusion: The data collected or reported in relation to sub-groups that characterise diversity in terms of health care needs, access, and marginalised populations are minimal. It is recommended that a set of equity and reporting principles is established for the future creation and use of any digital surveillance system.

Publisher

SAGE Publications

Reference58 articles.

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