Affiliation:
1. Clemson University, Clemson, SC, USA
Abstract
Parkinson’s Disease (PD) affects over 500,000 Americans, causing symptoms like tremors and stiffness. Informal caregivers, often family or friends, play a critical role in providing support, which includes emotional support, assistance with daily activities, and medication management. However, this caregiving is emotionally and physically taxing, leading to stress, burnout, and adverse effects on mental health. Online peer support groups, especially on platforms like Reddit, have become essential for caregivers, allowing them to connect virtually and share experiences, overcoming geographical and time constraints and reluctance to engage in person. This study aims to explore the specific needs and challenges faced by PD caregivers in these online communities. It examines the types of information they seek, the responses they receive, and the range of emotions they experience. By understanding these aspects, the research seeks to enhance the support dynamics and emotional wellbeing within these virtual support networks.