VISIBL-MS: A bilingual educational framework to increase awareness of early multiple sclerosis

Author:

Patel Shivam12,Rafferty Seamus12,Aquino Laura13,Chadha Saloni14,Ginocchio Richard13,Cyr Brooke13,Fedorko Joshua15,Imitola Jaime12

Affiliation:

1. Division of Multiple Sclerosis and Neuroimmunology and Comprehensive Multiple Sclerosis and Neuroimmunology Center, UConn Health, Farmington, CT, USA

2. School of Medicine, University of Connecticut, Farmington, CT, USA

3. Department of Neuroscience, Undergraduate Programs, Sacred Heart University, Fairfield, CT, USA

4. Lake Erie College of Osteopathic Medicine, Bradenton, FL, USA

5. Frank H. Netter MD School of Medicine, Quinnipiac University, North Haven, CT, USA

Abstract

Background: Despite advancements in treatments of multiple sclerosis (MS), there is a lack of awareness of early MS symptoms, especially in students and the public, contributing to delays in diagnosis and treatment. This review aims to identify gaps in tools to increase awareness and to provide a bilingual framework to facilitate recognition of early MS symptoms. Methods: We performed a literature review to determine the use of English and Spanish mnemonics in MS education for medical students and patients. Results: There is no educational tool to help remember the early signs of MS at present. Here we present a framework for early awareness encompassed in the bilingual mnemonics VISIBLY (English) and VISIBLE (Spanish). VISIBLY stands for (1) Vision changes: Painful vision loss, loss of color vision or double vision; (2) Belly or Back numbness and Balance issues; (3) Limb weakness or Numbness; (4), Young people. Spanish version is included in the manuscript. Conclusion: We posit that VISIBL-MS provides a framework for MS awareness that addresses the interconnection between language, culture, health literacy, and health outcomes and can be a useful educational tool to tackle the effects of health literacy on diverse communities.

Publisher

SAGE Publications

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