Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities-Reference-Cited by-同舟云学术

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Published:2024-03-28 Issue:2 Volume:62 Page:101-113
ISSN:1934-9556
Container-title:Intellectual and Developmental Disabilities
language:en
Short-container-title:

Author:

Lahaije Siméon T. A.¹,Luijkx Jorien¹,Waninge Aly¹,van der Putten Annette A. J.¹

Affiliation:

1. Siméon T. A. Lahaije and Jorien Luijkx, Inclusive and Special Needs Education, Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands; Aly Waninge, Research Group of Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, The Netherlands, and Department of Health Psychology, University Medical Center Groningen, Groningen, The Netherlands; and Annette A. J. van der Putten, Inclusive and Special Needs Education, Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands

Abstract

Abstract Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience their family resilience, and if and how it affects their FQOL. Participants were 64 parents of a person with PIMD from 44 families. Total family resilience, as well as most subscales received positive scores, and also had a significant positive effect on FQOL. These results provide more insight into the family dynamics of families with a child with PIMD, which should inform policies, and provided services for these families.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Link

https://meridian.allenpress.com/idd/article-pdf/62/2/101/3348004/i1934-9556-62-2-101.pdf

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