Service user perspectives of community mental health services for people with complex emotional needs: a co-produced qualitative interview study

Author:

Trevillion KyleeORCID,Stuart RuthORCID,Ocloo JosephineORCID,Broeckelmann EvaORCID,Jeffreys Stephen,Jeynes Tamar,Allen Dawn,Russell Jessica,Billings JoORCID,Crawford Mike JORCID,Dale OliverORCID,Haigh RexORCID,Moran PaulORCID,McNicholas Shirley,Nicholls VickyORCID,Foye UnaORCID,Simpson AlanORCID,Lloyd-Evans BrynmorORCID,Johnson SoniaORCID,Oram SianORCID

Abstract

AbstractBackgroundThere is consensus that services supporting people with complex emotional needs are part of a mental health care system in which change is needed. To date, service users’ views and co-production exercises have had little impact on the development of treatment and care. This needs to change, and our paper evidences the experiences and perspectives of a diverse range of people on how community services can best address the needs of people with complex emotional needs.MethodsA co-produced qualitative research study. Lived experience researchers led data collection and analysis. Individual interviews were conducted with 30 people across England who had a diverse range of experiences and perspectives of using community services for complex emotional needs. Participants were asked about their experiences of using community services for their mental health, and views on how community services can best address their needs. Thematic analysis was used to analyse the data.ResultsParticipants reported some experiences of good practice but also of experiences of severely stigmatising treatment, a lack of effective support and service fragmentation. Relational Practice was identified as the central overarching theme and describes how community services can best support people with complex emotional needs. This approach involves care delivered in a non-stigmatising, individualised, compassionate and trauma-informed manner. It involves care that is planned collaboratively with service users to ensure their multiple needs are addressed in a flexible, holistic and consistent way which accounts for the long-term and fluctuating nature of their needs.ConclusionsRelational practice approaches have potential to facilitate better community care for people with complex emotional needs. Research and service development are needed to examine how best to implement such approaches across the mental health service system. This work must be co-produced with people with relevant lived experience, their carers and the professionals who support them.

Publisher

Cold Spring Harbor Laboratory

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