1. Center for Congenital Heart Disease, University Hospital Inselspital, Department of Cardiology, University of Bern, Freiburgstrasse 15, 3010 Bern, Switzerland
2. Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, box 7001, 3000 Leuven, Belgium
3. Faculty of Medicine and Health Sciences, Centre for Research and Innovation in Care, Division of Nursing and Midwifery, University of Antwerp, Universiteitsplein 1, 2610 Antwerp, Belgium
4. Department of Cardiology, Hospital Universitario Virgen del Rocio, Avenida Manuel Siurot s/n. 41013 Seville, Spain
5. Knight Cardiovascular Institute, Oregon Health & Science University, 3181 SW Sam Jackson Park Rd, UHN-62 Portland, Oregon, USA
6. Institute of Health and Care Science, University of Gothenburg, Arvid Wallgrens Backe, Box 457, 405 30 Gothenburg, Sweden
7. Department of Paediatrics and Child Health, University of Cape Town, Klipfrontein Road Mowbray, Cape Town 7700, South Africa
8. Division of Cardiology, Peter Munk Cardiac Centre; Toronto Congenital Cardiac Centre for Adults, University of Toronto, 585 University Avenue; Toronto ON M5G 2N2, Canada
9. Department of Cardiology, University Hospital Basel, University of Basel, Petersgraben 44031 Basel, Switzerland
10. European Society of Cardiology Patient Forum Representative, Member of “Cuore Matto” and Global ARCH, Dorfstrasse 64, 8126 Zumikon, Switzerland
11. Department of Cardiology, Medical University of Vienna, Waehringer Guertel 18-20, 1090 Vienna, Austria
12. Department of Cardiology, University Heart Center, Raemistrasse 100, 8091 Zurich, Switzerland
13. Department of Cardiology, Erasmus MC, Erasmus University, P.O. Box 2040, 3000 CA Rotterdam, The Netherlands
14. Palliative Care Unit and Competence Center, Department of Internal Medicine, Hospital Schwyz, Waldeggstrasse 10, 6430 Schwyz, Switzerland