Returning value to the community through the All of Us Research Program Data Sandbox model

Author:

Cohn Elizabeth1,Kleiman Frida Esther2ORCID,Muhammad Shayaa1,Jones S Scott1ORCID,Pourkey Nakisa1,Bier Louise3

Affiliation:

1. Northwell Health, Institute of Health Systems Science , Manhasset, NY 11030, United States

2. Chemistry Department, Hunter College, The City University of New York, New York, NY 10065, United States

3. Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai , New York, NY 10029, United States

Abstract

Abstract Objective The All of Us Research Program aims to return value to participants by developing research capacity in communities. We describe a novel set of introductory exercises (Data Sandboxes) and specialized trainings to orient researchers to the Researcher Workbench to foster health equity research. Materials and Methods We developed a tailored training to familiarize researchers with the All of Us Research Program: (1) orientation, (2) tailored “data treasure hunt” using the Public Data Browser, and (3) overview of the analyses tools and platform. Results Participants’ pre- and post-knowledge of the contents and structure of the All of Us dataset scores increased significantly after training. These trainings effectively engaged researchers in exploring this rich dataset. Conclusion We describe ways of orienting and familiarizing a wide variety of researchers with the All of Us Research Program dataset, sparking their interest, and “jump-starting” their research.

Funder

Interdisciplinary Guided Network for Investigation, Translational, and Equity, Division of Engagement and Outreach

Publisher

Oxford University Press (OUP)

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