Practical recommendations for the use of electronic headache diaries and video consultations in migraine care (Preprint)

Author:

van der Arend Britt WHORCID,Holwerda Linde J,Verhagen Iris EORCID,van Casteren Daphne S,Timmers ThomasORCID,Terwindt Gisela MORCID

Abstract

BACKGROUND

Telemedicine offers promising solutions to enhance personalized headache care. Telemedicine offers a promising solution to enhance the delivery and personalization of headache care. Integrating electronic (E-)tools enables the objective monitoring of migraine.

OBJECTIVE

This study aims to demonstrate the relevance of electronic (E)-tools for personalized headache care, assess patient and caregiver compliance and satisfaction, and present their use in enhancing care.

METHODS

Firstly, a systematic review was performed to validate the diagnostic accuracy of E-diaries for diagnosing migraine. Secondly, we collected E-diary data prospectively from diagnosed adult migraine patients at the Leiden Headache Center. Finally, questionnaires were sent to evaluate satisfaction of patients and healthcare providers with the Leiden E-headache diary and video consultations.

RESULTS

In the systematic review, the Leiden Headache Center's E-diary was the only validated tool. Patients (n=1,009) were followed for a median of 181 days (IQR 84-240). Compliance was 96.4% (IQR 85.2%-99.1%), with 10.8% of days missing. Factors positively associated with compliance were older age, female sex, higher E-diary grade, and clinical use. The E-diary received a median score of 8/10 and was well-liked by patients (n=535) and providers (n=23). Video consultations were a good alternative for physical visits according to 76.9% of patients and 84.6% of providers.

CONCLUSIONS

Validated E-headache diaries and video consultations in telemedicine enhance headache care accessibility, providing convenient care at preferred times and locations.

Publisher

JMIR Publications Inc.

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