The management of rare disease patients from a grassroot perspective: the role of patients’ organizations in the global recognition of rare diseases in Cameroon

Author:

Ngoumou Rose-Danielle,Feudjio Yves Bertrand Djouda

Publisher

Pan African Medical Journal

Reference17 articles.

1. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database;Nguengang Wakap S Lambert DM Olry A Rodwell C Gueydan C Lanneau V et al;Eur J Hum Genet,2020

2. The Challenge and promise of rare diseases diagnosis in China;Ni X Shi T;Sci China Life Sci,2017

3. Rare diseases and referral centers;Boy-Lefèvre ML De La Dure-Molla M Toupenay S Berdal A;Journal of Dentofacial Anomalies and Orthodontics,2014

4. Patient empowerment of people living with rare diseases. Its contribution to sustainable and resilient healthcare systems;De Santis M Hervas C Weinman A Bosi G Bottarelli V;Ann Ist Super Sanita,2019

5. Health systems implications of rare genetic conditions in low-and middle-income countries: a case study approach;Allotey PA Allotey-Reidpath CD Reidpath DD;Critical Public Health,2018

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