A Pilot Evaluation of an Educational Video to Support Consent to a Pediatric Malignancy Biobank-Reference-Cited by-同舟云学术

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A Pilot Evaluation of an Educational Video to Support Consent to a Pediatric Malignancy Biobank

Published:2024-05-27 Issue: Volume: Page:
ISSN:1947-5535
Container-title:Biopreservation and Biobanking
language:en
Short-container-title:Biopreservation and Biobanking

Author:

Robertson Eden G.¹²^ORCID,Komesaroff Rebecca³⁴⁵,Eisenstat David D.³⁵⁶,Robertson Alexandra³⁵,Ludlow Louise E.³⁵⁶^ORCID

Affiliation:

1. Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children’s Hospital, Randwick, Australia.

2. School of Clinical Medicine, UNSW Medicine & Health, Sydney, Australia.

3. The Royal Children’s Hospital Melbourne, Parkville, Australia.

4. Victorian Comprehensive Cancer Centre (VCCC) Alliance, Melbourne, Australia.

5. Murdoch Children’s Research Institute, Melbourne, Australia.

6. Department of Paediatrics, The University of Melbourne, Parkville, Australia.

Publisher

Mary Ann Liebert Inc

Link

https://www.liebertpub.com/doi/pdf/10.1089/bio.2024.0011

Reference32 articles.

1. Childhood cancer survival and avoided deaths in Australia, 1983–2016

2. Childhood Cancer Survivors’ Reported Late Effects, Motivations for Seeking Survivorship Care, and Patterns of Attendance

3. Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer

4. Personalized assent for pediatric biobanks

5. Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public

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