Effects of a Standardized Pamphlet on Insomnia in Children With Autism Spectrum Disorders

Author:

Adkins Karen W.1,Molloy Cindy2,Weiss Shelly K.3,Reynolds Ann4,Goldman Suzanne E.1,Burnette Courtney5,Clemons Traci6,Fawkes Diane1,Malow Beth A.1

Affiliation:

1. Sleep Disorders Division, Department of Neurology, Vanderbilt University Medical Center, Nashville, Tennessee;

2. Department of Pediatrics, Autism Speaks Community Partner, Cincinnati, Ohio;

3. Department of Paediatrics University of Toronto Hospital for Sick Children, Toronto, Ontario, Canada;

4. Department of Pediatrics, Children's Hospital Colorado, Aurora, Colorado;

5. Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee; and

6. EMMES Corporation, Rockville, Maryland

Abstract

OBJECTIVE Sleep difficulties are common reasons why parents seek medical intervention in children with autism spectrum disorders (ASDs). We determined whether a pamphlet alone could be used by parents to help their child’s insomnia. METHODS Thirty-six children with ASD, ages 2 to 10 years, were enrolled. All had prolonged sleep latency confirmed by actigraphy showing a mean sleep latency of 30 minutes or more. Parents were randomly assigned to receive the sleep education pamphlet or no intervention. Children wore an actigraphy device to record baseline sleep parameters, with the primary outcome variable being change in sleep latency. Actigraphy data were collected a second time 2 weeks after the parent received the randomization assignment and analyzed by using Student’s t test. Parents were also asked a series of questions to gather information about the pamphlet and its usefulness. RESULTS Although participants randomized to the 2 arms did not differ statistically in age, gender, socioeconomic status, total Children’s Sleep Habits Questionnaire score, or actigraphy parameters, some differences may be large enough to affect results. Mean change in sleep-onset latency did not differ between the randomized groups (pamphlet versus no pamphlet). Parents commented that the pamphlet contained good information, but indicated that it would have been more useful to be given specific examples of how to take the information and put it into practice. CONCLUSIONS A sleep education pamphlet did not appear to improve sleep latency in children with ASDs.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology, and Child Health

Reference24 articles.

1. Blood Draw Toolkit. Autism Speaks. Available at: www.autismspeaks.org/science/resources-programs/autism-treatment-network/tools-you-can-use/blood-draw-toolkits. Accessed August 1, 2011

2. Prevalence of autism spectrum disorders - autism and developmental disabilities monitoring network, United States, 2006.;Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators;MMWR Surveill Summ,2009

3. Parental perception of sleep problems in children of normal intelligence with pervasive developmental disorders: prevalence, severity, and pattern.;Couturier;J Am Acad Child Adolesc Psychiatry,2005

4. Sleep patterns in preschool-age children with autism, developmental delay, and typical development.;Goodlin-Jones;J Am Acad Child Adolesc Psychiatry,2008

5. Customized Sleep Profile & Expert Sleep Advice. Johnson’s bath…massage…quietly Off to sleep. Available at: www.johnsonsbaby.com/sleep. Accessed August 1, 2011

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