Bioethics for Neonatal Cardiac Care

Author:

Madrigal Vanessa N.1,Feltman Dalia M.2,Leuthner Steven R.3,Kirsch Roxanne4,Hamilton Rekha5,Dokken Deborah6,Needle Jennifer7,Boss Renee8,Lelkes Efrat9,Carter Brian10,Macias Eduardo11,Bhombal Shazia12

Affiliation:

1. aDepartment of Pediatrics, Division of Critical Care Medicine and Pediatric Ethics Program, Children’s National Hospital, George Washington University, Washington, District of Columbia

2. bNorthShore University HealthSystem Evanston Hospital, University of Chicago, Pritzker School of Medicine, Chicago, Illinois

3. cDepartments of Pediatrics and Bioethics, Division of Neonatology, Children’s Wisconsin, Medical College of Wisconsin, Milwaukee, Wisconsin

4. dDepartment of Critical Care, Division Cardiac Critical Care Medicine; Department of Bioethics, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

5. eMednax Inc. Cook Children’s Medical Center, Fort Worth, Texas

6. fFamily Leader and Staff Member, Institute for Patient and Family-Centered Care, Bethesda, Maryland

7. gDepartment of Pediatrics and the Center for Bioethics, University of Minnesota, Minneapolis, Minnesota

8. hDepartment of Pediatrics, Johns Hopkins School of Medicine and Berman Institute of Bioethics, Baltimore, Maryland

9. iDepartment of Pediatrics, Divisions of Critical Care Medicine and Palliative Medicine, Bioethics, University of California San Francisco, San Francisco, California

10. jDepartments of Humanities and Pediatrics, Division of Neonatology and Bioethics Center, Children’s Mercy Hospital, University of Missouri-Kansas City School of Medicine, Kansas City, Missouri

11. kDepartment of Pediatrics, Division of Pediatric Cardiology. University Hospital, University of Texas, San Antonio, Texas

12. lDepartment of Pediatrics, Lucile Packard Children’s Hospital. Stanford, Palo Alto, California

Abstract

BACKGROUND Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Ethical Challenges at the Frontiers of Medical Care for Children with Congenital Heart Disease in the U.S;Current Treatment Options in Pediatrics;2023-09-09

2. How to Support Families through Rituals and Memory-Making;Perinatal Bereavement Rituals and Practices Among U. S. Cultural Groups;2023

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