Parental experiences of congenital heart disease transition care highlight the need for family-centered approaches
-
Published:2024-07-13
Issue:
Volume:
Page:ebnurs-2024-104048
-
ISSN:1367-6539
-
Container-title:Evidence Based Nursing
-
language:en
-
Short-container-title:Evid Based Nurs
Author:
Fox Kristen RORCID,
Garg ViduORCID
Reference6 articles.
1. Moons P , Skogby S , Bratt E-L , et al . Discontinuity of cardiac follow‐up in young people with congenital heart disease transitioning to adulthood: a systematic review and meta‐analysis. J Am Heart Assoc 2021;10. doi:10.1161/JAHA.120.019552
2. John AS , Jackson JL , Moons P , et al . Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement from the American heart association. J Am Heart Assoc 2022;11. doi:10.1161/JAHA.122.025278
3. Lykkeberg B , Noergaard MW , Bjerrum M . Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: a qualitative systematic review. J Child Health Care 2024;8. doi:10.1177/13674935241231024
4. Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease;de Hosson;Patient Educ Couns,2024
5. Effectiveness of the STEPSTONES transition program for adolescents with congenital heart disease-a randomized controlled trial;Bratt;J Adolesc Health,2023