Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis

Author:

Modi Avani C,Quittner Alexandra L,Boyle Michael P

Publisher

Springer Science and Business Media LLC

Subject

Pulmonary and Respiratory Medicine

Reference15 articles.

1. Cystic Fibrosis Foundation: Patient registry annual data report, 2008. 2010, [ http://www.cff.org/LivingWithCF/QualityImprovement/PatientRegistryReport/ ]

2. Quittner AL, Modi AC, Boyle MH: The role of independence in daily functioning for adults with cystic fibrosis: Results from the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey. 22nd Annual North American Cystic Fibrosis Conference, Orlando, FL. 2008

3. Christian BJ, D'Auria JP: The child's eye: memories of growing up with cystic fibrosis. J Pediatr Nurs. 1997, 12 (1): 3-12. 10.1016/S0882-5963(97)80016-4.

4. Lowton K: Only when I cough? Adults' disclosure of cystic fibrosis. Qual Health Res. 2004, 14 (2): 167-186. 10.1177/1049732303260675.

5. Arnold ME, Rice E, Flannery D, Rotherram-Borus MJ: HIV disclosure among adults living with HIV. AIDS Care. 2008, 20 (1): 80-92. 10.1080/09540120701449138.

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