Abstract
Abstract
Background
We hypothesise that a physical activity (PA) intervention will improve the quality of life (QoL) of people with a stoma. A feasibility study of the intervention and trial parameters is necessary to inform a future main trial.
Methods
Participants received a weekly PA consultation by telephone, video conferencing, or face-to-face for 12 weeks with a PA instructor who prescribed physical activities and supported participants by addressing stoma-related concerns and using behaviour change techniques. A feasibility study of the intervention and trial parameters was conducted in three UK sites using mixed methods.
Results
The number of eligible patients consenting to the study was 30 out of 174 (17%). Most participants were female (73%); 73% had an ileostomy and 27% a colostomy; mean time since diagnosis was 6 months. A total of 18 (64%) participants completed pre- (baseline) and post-intervention (follow-up) measures. Results show an improvement on all scales measuring QoL and disease-specific fatigue. The median PA consultation rate per participant was eight sessions. Participants reported completing 75% or more of the prescribed PA each week. Eight stoma-related themes were identified from qualitative interviews: fear of hernia, bending down, fatigue, pain, prolapse, surgical wounds, stoma appliance, and stigma. The intervention appeared to address these issues.
Conclusion
This feasibility study demonstrated that a novel manualised PA intervention for people with a stoma is safe, feasible, and acceptable, and shows promise for improving outcomes. However, difficulties with recruitment will need to be carefully considered to ensure the success of future studies in this area.
Trial registration
ISCTN, ISRCTN58613962; Registered 14/9/2017.
Funder
Bowel and Cancer Research
Ileostomy and Internal Pouch Association UK
Publisher
Springer Science and Business Media LLC
Reference55 articles.
1. Claessens IPR, Tielemans C, Steen A, Nilsson C, Andersen B, Stirling Z. The ostomy life study: the everyday challenges faced by people living with a stoma in a snapshot. Gastrointest Nurs. 2015;13(5):18–25.
2. HQIP. National Bowel Cancer Audit Annual Report. London. 2018. https://www.hqip.org.uk/resource/national-bowel-cancer-audit-annual-report-2018/#.Xjkb-S10dBw.
3. UK CsC. Stomas and IBD: Crohn’s & Colitis; 2014 [Available from: https://www.crohnsandcolitis.org.uk/research/projects/stomas-and-ibd.
4. Taylor P. An introduction to stomas: reasons for their formation. Nurs Times. 2005;101(29):63–4.
5. Duricova D, Burisch J, Jess T, Gower-Rousseau C, Lakatos PL, EpiCom E. Age-related differences in presentation and course of inflammatory bowel disease: an update on the population-based literature. J Crohns Colitis. 2014;8(11):1351–61.
Cited by
14 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献