Health service security of patients with 8 certain rare diseases: evidence from China’s national system for health service utilization of patients with healthcare insurance
Author:
Funder
National Natural Science Foundation of China
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Genetics(clinical),General Medicine
Link
http://link.springer.com/content/pdf/10.1186/s13023-019-1165-7.pdf
Reference60 articles.
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2. Yang L, Su C, Lee AM, Bai HX. Focusing on rare diseases in China: are we there yet? Orphanet J Rare Dis. 2015;10:142.
3. World Health Organization (WHO). Coming together to combat rare diseases. B World Health Organ. 2012;90(6):401–76.
4. European Organisation For Rare Diseases (EURORDIS): What is a rare disease? 2013. Available at https://www.eurordis.org/content/what-rare-disease . Accessed 11 Dec 2017.
5. Song P, He J, Li F, Jin C. Innovative measures to combat rare diseases in China: the national rare diseases registry system, larger-scale clinical cohort studies, and studies in combination with precision medicine research. Intractable Rare Dis Res. 2017;6(1):1–5.
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