The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks

Author:

Evangelista Teresinha,Hedley Victoria,Atalaia Antonio,Johnson Matt,Lynn Stephen,Le Cam Yann,Bushby Kate

Funder

European Union’s Health Programme

Medical Research Council

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Genetics (clinical),General Medicine

Reference13 articles.

1. Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients’ rights in cross-border healthcare. OJ L 88, 4.4.2011, p. 45–65

2. 2014/286/EU: Commission Delegated Decision of 10 March 2014 setting out criteria and conditions that European Reference Networks and healthcare providers wishing to join a European Reference Network must fulfil Text with EEA relevance. OJ L 147, 17.5.2014, p. 71–78

3. 2014/287/EU: Commission Implementing Decision of 10 March 2014 setting out criteria for establishing and evaluating European Reference Networks and their Members and for facilitating the exchange of information and expertise on establishing and evaluating such Networks Text with EEA relevance. OJ L 147, 17.5.2014, p. 79–87

4. Palm W, Glinos IA, Rechel B, Garel P, Reinhard B, Figueras J. Building European Reference Networks in Health Care: Exploring concepts and national practices in the European Union. European Observatory on Health Systems and Policies; 2013. http://www.euro.who.int/__data/assets/pdf_file/0004/184738/e96805-final.pdf .

5. Position paper: EUROPEAN REFERENCE NETWORKS FOR RARE DISEASES. EURORDIS; May 2012. http://www.eurordis.org/sites/default/files/EURORDIS_Position_paper_on_ERN_May_2012.pdf

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