Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand

Author:

Cheah Phaik Yeong,Jatupornpimol Nattapat,Hanboonkunupakarn Borimas,Khirikoekkong Napat,Jittamala Podjanee,Pukrittayakamee Sasithon,Day Nicholas P. J.,Parker Michael,Bull Susan

Funder

Wellcome Trust

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science),Issues, ethics and legal aspects

Reference43 articles.

1. European Medicines Agency. Policy on publication of clinical data for medicinal products for human use (EMA/240810/2013) 2014. http://www.ema.europa.eu/ema/index.jsp?curl=pages/special_topics/general/general_content_000556.jsp# . Accessed 9 June 2018.

2. Wellcome Trust. Policy on data, software and materials management and sharing 2017. https://wellcome.ac.uk/funding/managing-grant/policy-data-software-materials-management-and-sharing . Accessed 9 June 2018.

3. Bill & Melinda Gates Foundation. Open Access Policy 2015. https://www.gatesfoundation.org/How-We-Work/General-Information/Open-Access-Policy . Accessed 9 June 2018.

4. Taichman DB, Shahni P, Pinborg A, Peiperl L, Laine C, James A, et al. Data sharing statements for clinical trials: a requirement of the International Committee of Medical Journal Editors. Bull World Health Organ. 2017;95:482–3.

5. Bull S, Roberts N, Parker M. Stakeholder perspectives on sharing de-identified individual-level data from medical and public health research: a scoping review. J Empir Res Hum Res Ethics. 2015;10:225–38.

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