Autism and Family in the People's Republic of China: Learning from Parents' Perspectives

Abstract

Although there is some reported research on the experiences of parents who have children with autism, very little is known about the experiences of parents in other countries—specifically, China. This study investigated the perspectives of parents on their experiences having children with autism in that country. Seventy eight parents completed questionnaires with 14 open-ended questions regarding their own and their families' experiences having a child with autism, and 13 participated in follow-up interviews. Analysis of data suggested three themes. First, parents reacted to the diagnosis with shock and confusion. Second, mothers and fathers were impacted differently. Finally, the impact of a child with autism on a spousal relationship was multifaceted. With both positive and challenging impacts, the article discusses the unique situation of families in China as well as commonalities with Western families.