A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)

Author:

Janssens Astrid I.W.A.1,Ruytings Marijke2,Al-Chalabi Ammar3,Chio Adriano4,Hardiman Orla5,Mcdermott Christopher J.6,Meyer Thomas7,Mora Gabriele8,Van Damme Philip9,Van Den Berg Leonard H.10,Vanhaecht Kris11,Winkler Andrea S.12,Sermeus Walter13,

Affiliation:

1. KU Leuven Institute for Healthcare Policy, Department of Public Health and Primary Care, University of Leuven - KU Leuven, Leuven, Belgium;

2. KU Leuven Institute for Healthcare Policy, Department of Public Health and Primary Care, University of Leuven- KU Leuven, Leuven, Belgium;

3. Maurice Wohl Clinical Neuroscience Institute, King’s College London, London, UK;

4. Rita Levi Montalcini Department of Neuroscience, University of Turin, Turin, Italy, and Azienda Ospedaliero Universitaria Città della Salute e della Scienza, Turin, Italy;

5. Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College Dublin, Dublin, Ireland;

6. Sheffield Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK;

7. Outpatient Department for ALS and other Motor Neuron Diseases, Charité - Universitätsmedizin Berlin, Berlin, Germany;

8. Department of Neuroscience and Rehabilitation, Fondazione Salvatore Maugeri IRCCS, Milan, Italy;

9. Department of Neurosciences, VIB-Vesalius Research Center, Experimental Neurology-Laboratory of Neurobiology, University of Leuven - KU Leuven, Leuven, Belgium and Department of Neurology, University Hospitals Leuven, Leuven, Belgium;

10. Brain Center Rudolf Magnus, Department of Neurology, University Medical Center Utrecht, Utrecht, The Netherlands;

11. KU Leuven Institute for Healthcare Policy, Department of Public Health and Primary Care, University of Leuven – KU Leuven, Leuven, Belgium and Department of Quality Management, University Hospitals Leuven, Leuven, Belgium;

12. Department of Neurology, Klinikum rechts der Isar, Technische Universität München, Munich, Germany;

13. Walter Sermeus, KU Leuven Institute for Healthcare Policy, Department of Public Health and Primary Care, University of Leuven - KU Leuven, Leuven, Belgium

Publisher

Informa UK Limited

Subject

Neurology (clinical),Neurology

Reference76 articles.

1. Clinical features of amyotrophic lateral sclerosis and other forms of motor neuron disease [Internet]. [cited 2015 Apr 9]. Available from: http://www.uptodate.com/contents/clinical-features-of-amyotrophic-lateralsclerosis-and-other-forms-of-motor-neuron-disease.

2. Amyotrophic lateral sclerosis

3. Changes in cognition and behaviour in amyotrophic lateral sclerosis: nature of impairment and implications for assessment

4. Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: A review

5. Quality of life of patients with amyotrophic lateral sclerosis

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