Living with Moebius syndrome

Author:

Jenkinson Elizabeth1,Bogart Kathleen2,Hamlet Claire3,Davies Laura4

Affiliation:

1. Health psychologist and senior lecturer, Faculty of Health and Applied Sciences, University of the West of England (UWE), Bristol, UK

2. Associate professor, School of Psychological Science, Oregon State University, US

3. Health psychologist and research fellow, Centre for Appearance Research, Faculty of Health and Applied Sciences, University of the West of England (UWE), Bristol, UK

4. Counselling psychologist, Adult Mental Health, Hywel Dda University Health Board, NHS Wales

Abstract

Moebius syndrome is a congenital neurological disorder that impacts facial expression, communication and appearance. In this article, the authors will discuss the psychological and social impacts of living with this rare form of facial palsy. Existing research suggests that patients may face challenges in developing psychological wellbeing, positive body image and in communicating effectively with others. Therefore, recommendations for nursing practitioners in how to best support this patient group are discussed.

Publisher

Mark Allen Group

Subject

General Earth and Planetary Sciences,General Engineering,General Environmental Science

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