Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

Author:

Shabani Mahsa,Borry Pascal

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Genetics

Reference30 articles.

1. Knoppers BM. Framework for responsible sharing of genomic and health-related data. HUGO J. 2014;8:1.

2. Hayden EC. Geneticists push for global data-sharing: international organization aims to promote exchange and linking of DNA sequences and clinical information. Nature. 2013;498:16–8.

3. Knoppers BM, Harris JR, Tassé AM, et al. Towards a data sharing Code of Conduct for international genomic research. Genome Med. 2011;3:1.

4. European Commission. Ethical, Legal and Social Aspects of Genetic Testing: Research, Development and Clinical Applications, 2004. Available online at: https://publications.europa.eu/en/publication-detail/-/publication/2159a3bb-92af-4c6e-ab27-7bb0189773f9

5. de Paor A. Regulating genetic information—exploring the options in legal theory. Eur J Health Law. 2014;21:425–53.

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