Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma-Reference-Cited by-同舟云学术

Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma

Published:2016-01 Issue:1 Volume:5 Page:17-30
ISSN:2042-6305
Container-title:Journal of Comparative Effectiveness Research
language:en
Short-container-title:Journal of Comparative Effectiveness Research

Author:

Erwin Kim¹,Martin Molly A²,Flippin Tara¹,Norell Sarah¹,Shadlyn Ariana¹,Yang Jie¹,Falco Paula¹,Rivera Jaime¹,Ignoffo Stacy³,Kumar Rajesh⁴,Margellos-Anast Helen⁵,McDermott Michael⁶,McMahon Kate⁷,Mosnaim Giselle⁸,Nyenhuis Sharmilee M²,Press Valerie G⁹,Ramsay Jessica E⁵,Soyemi Kenneth¹⁰,Thompson Trevonne M²,Krishnan Jerry A²¹¹

Affiliation:

1. IIT Institute of Design, 350 N LaSalle, Chicago, IL 60654, USA

2. University of Illinois at Chicago, 1200 W Harrison St Chicago, IL 60607, USA

3. Chicago Asthma Consortium, PO Box 31757, Chicago, IL 60631, USA

4. Ann & Robert H Lurie Children's Hospital of Chicago, 225 E Chicago Ave., Chicago, IL 60611, USA

5. Sinai Health System, California Avenue, 15th Street, Chicago, IL 60608, USA

6. Illinois Emergency Department Asthma Surveillance Project (IEDASP)

7. Respiratory Health Association, 1440 W Washington Blvd, Chicago, IL 60607, USA

8. Rush University Medical Center, 1653 W Congress Pkwy, Chicago, IL 60612, USA

9. University of Chicago, 5801 S Ellis Ave., Chicago, IL 60637, USA

10. John H Stroger Jr Hospital of Cook County, 1901 W Harrison St Chicago, IL 60612, USA

11. University of Illinois Hospital & Health Sciences System, 1740 W Taylor St Chicago, IL 60612, USA

Abstract

Aim: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma. Methods: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate. Results: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools. Conclusion: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.

Publisher

Future Medicine Ltd

Subject

Health Policy

Link

https://www.futuremedicine.com/doi/pdf/10.2217/cer.15.52

Reference28 articles.

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2. National Institutes of Health/National Heart, Lung, and Blood Institute. Expert Panel Report 3: guidelines on asthma. www.nhlbi.nih.gov/health-pro/guidelines/current/asthma-guidelines/full-report.

3. Global Initiative for Asthma (GINA). www.ginasthma.org/.

4. Asthma action plans are highly variable and do not conform to best visual design practices

5. Understanding what helps or hinders asthma action plan use: A systematic review and synthesis of the qualitative literature

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