Live networks in care production with the user at the center of the treatment for multidrugresistant tuberculosis

Author:

Leung Janaina Aparecida de Medeiros1ORCID,Cunha Fátima Teresinha Scarparo2ORCID,Merhy Emerson Elias3ORCID,Kritski Afranio Lineu2ORCID

Affiliation:

1. Universidade Federal do Rio de Janeiro, Brasil

2. UFRJ, Brasil

3. Instituto de Ciências Médicas, Brasil

Abstract

We followed the trajectory of a guiding user undergoing treatment for multidrug-resistant tuberculosis (MDR-TB). The narratives of Live Networks in care production showed: 1) Caring in the act of living: Overcoming stigmas and cultivating bonds that help overcome discourses fostered by fear, prejudice, exclusion and invisibility of subjects; 2) Live Networks of care: The in-betweens of the norm; and 3) Interfaces of user-health worker care: How can we demystify the judgment of health workers who, subordinated to limiting protocols, often stigmatize the user as someone who “abandons the treatment”? The guiding user perceived that caring means deterritorializing oneself, expressing one’s desires as power for transformation, and leaving the modus operandi towards creativity, with the user at the center of the process.

Publisher

FapUNIFESP (SciELO)

Subject

General Medicine,Communication,Education,Health (social science)

Reference30 articles.

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4. Adesão terapêutica sob o olhar foucaultiano: saberes/poderes nos manuais de controle da tuberculose no Brasil;Zago PTN;Rev Gaucha Enferm,2022

5. As práticas corporais como dispositivos da biopolítica e do biopoder na atenção primária à saúde;Oliveira Junior JB;Saude Debate,2021

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