Creating Family-Centred Support for Preschoolers with Developmental Disabilities in Low-Income Countries: A Rapid Review to Guide Practitioners

Author:

McConkey Roy1ORCID

Affiliation:

1. Institute of Nursing and Health Research, Ulster University, Belfast BT15 1ED, UK

Abstract

Preschoolers with disabilities and their caregivers have been neglected in health and social service provision in most low-income countries and arguably also in low-resourced areas of more affluent nations. Yet as this rapid review of the published literature identifies, there are low-cost, evidence-based strategies to address their needs that can be implemented in communities by local people. Five key features of the necessary supports are examined. First, the leadership functions required to create and implement the support services. Second, the family-centred, home-based support provided to caregivers and the personnel undertaking this form of support. Third, providing opportunities for peer support to flourish and encouraging the formation of advocacy groups across families. Fourth, mobilizing the support of significant groups within the community: notably, traditional healers and leaders, health services and poverty alleviation initiatives. Fifth, devising ways in which preschool educational opportunities can be offered to children as a prelude to their inclusion in primary schools. The review serves a further purpose. It provides an example of how public health researchers and academics could achieve more rapid implementation of evidence-based knowledge into existing and new support services through dissemination to community practitioners.

Publisher

MDPI AG

Reference60 articles.

1. McConkey, R., Allan, S., Mlambo, C., Kambarami, P., and Martin, K. (2024, May 13). Creating Family-Centred Support for Children with Developmental Disabilities in Africa. Examples of Local Community Interventions. (Paper under Review). Available online: https://www.researchgate.net/publication/380478268_Creating_Family-Centred_Support_for_Children_with_Developmental_Disabilities_in_Africa_Examples_of_Local_Community_Interventions.

2. World Health Organization (2024, February 29). World Report on Disability, 2011. WHO. Available online: https://www.who.int/publications/i/item/9789241564182.

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4. Vargas-Baron, E., Small, J., Wertlieb, D., Hix-Small, H., Gomez Botero, R., Diehl, K., Vergara, P., and Lynch, P. (2019). Global Survey of Inclusive Early Childhood Development and Early Childhood Intervention Programs, RISE Institute. Available online: https://www.unicef.org/media/126046/file/Global-Survey-of-IECD-and-ECI-Programs-2019.pdf.

5. Smythe, T., Scherer, N., Nanyunja, C., Tann, C.J., and Olusanya, B.O. (2024). Strategies for addressing the needs of children with or at risk of developmental disabilities in early childhood by 2030: A systematic umbrella review. BMC Med., 22.

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