A Perspective on the Quality of Life of Hemophilia A Patients in Romania—A Study on 100 Patients-Reference-Cited by-同舟云学术

A Perspective on the Quality of Life of Hemophilia A Patients in Romania—A Study on 100 Patients

Published:2022-11-16 Issue:2 Volume:1 Page:105-112
ISSN:2813-2475
Container-title:Journal of Vascular Diseases
language:en
Short-container-title:JVD

Author:

Guran Catalina,Ioniţă Hortensia Mărioara,Haţegan Mieta-Gabriela,Ioniţă Ioana^ORCID,Trăilă Adina,Ilie Alina-Maria

Abstract

Hemophilia A is an X-linked coagulopathy, where there is a deficit in the production of the coagulation factor VIII. Even though there is a higher incidence of hemophilia A than of hemophilia B, it is still considered a rare disease, as its incidence is of 1 in 10,000 people born. We have applied three questionnaires regarding quality of life: Haem-A-QoL, Haemo-SYM and EQ-5D-5L to 101 adult patients with hemophilia A, which were separated into two groups: on-demand and prophylactic treatment. The results showed a relatively young lot, with medium and high education, but with a sedentary lifestyle and are pensioners. They also seem to have moderate mobility issues but, overall, a good quality of life. The quality of life in our studied lot is relatively good, but a more diverse lot is advised.

Publisher

MDPI AG

Link

https://www.mdpi.com/2813-2475/1/2/12/pdf

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