Reproductive deliberation: Supporting autonomous decision making in prenatal genetic counseling

Author:

Warton Chanelle1ORCID,Johnston Molly1ORCID,Mills Catherine1ORCID

Affiliation:

1. Monash Bioethics Centre Monash University Clayton Victoria Australia

Abstract

AbstractAs both the scope and popularity of non‐invasive prenatal testing (NIPT) have expanded, debate has emerged about the extent to which this test enhances or undermines reproductive autonomy. Genetic counseling is crucial to support autonomy in the context of making complex and value‐laden decisions about reproductive care following high‐chance results from NIPT. Two models of post‐test prenatal genetic counseling have been proposed; the first of these, non‐directive counseling, is the predominant model, while shared decision making is an alternative model deriving from patient care for chronic conditions. In this paper, we argue that neither of these approaches is adequate for counseling after NIPT to support reproductive autonomy. Instead, then, we propose an alternative approach that we call reproductive deliberation. This approach to prenatal genetic counseling simultaneously recognizes the relationality of the counseling encounter and supports the decision making capacity and decisional responsibility of the pregnant person.

Publisher

Wiley

Subject

Genetics (clinical)

Reference58 articles.

1. Interpretations of autonomous decision-making in antenatal genetic screening among women in China, Hong Kong and Pakistan

2. Association of Ontario Midwives. (2017).Prenatal genetic screening.https://www.ontariomidwives.ca/prenatal‐genetic‐screeningRetrieved November 28 2022.

3. Prenatal testing: Does reproductive autonomy succeed in dispelling eugenic concerns?

Cited by 4 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3