Cornelia de Lange syndrome: Parental preferences regarding the provision of medical information
Author:
Publisher
Wiley
Subject
Genetics (clinical),Genetics
Reference42 articles.
1. Chronic childhood illnesses: what aspects of caregiving do parents value?
2. Behavioural phenotype of Cornelia de Lange syndrome
3. Goals, benefits, and outcomes of genetic counseling: Client and genetic counselor assessment
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1. Differences in the Information Needs of Parents With a Child With a Genetic Syndrome: A Cross-Syndrome Comparison;Journal of Policy and Practice in Intellectual Disabilities;2018-04-10
2. Experiences of caregivers of infants who have been on bubble continuous positive airway pressure at Queen Elizabeth Central Hospital, Malawi: A descriptive qualitative study;Malawi Medical Journal;2017-05-03
3. Pain and Grief in the Experience of Parents of Children with a Congenital Malformation;Neonatal Pain;2017
4. Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange syndrome;American Journal of Medical Genetics Part C: Seminars in Medical Genetics;2016-05-10
5. Cornelia de Lange Syndrome: A Case Report of a Brazilian Boy;The Cleft Palate-Craniofacial Journal;2011-07
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