Parental perspectives on living with a child with HoPE
Author:
Publisher
Wiley
Subject
Genetics (clinical),Genetics
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1002/ajmg.c.30237/fullpdf
Reference13 articles.
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2. Is parental coping associated with the level of function in children with physical disabilities?;Cavallo;Child Care Health Dev,2009
3. Stress and well-being among parents of children with rare diseases: A prospective intervention study;Delive;J Adv Nurs,2006
4. Between joy and sorrow: Being a parent of a child with developmental disability;Kearney;J Adv Nurs,2001
5. Management of children with holoprosencephaly;Levey;Am J Med Genet Part C Semin Med Genet
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3. Quality of life in adolescents with cerebral palsy;The Lancet;2015-02
4. Expanding the Phenotypic Expression of Sonic Hedgehog Mutations Beyond Holoprosencephaly;Journal of Craniofacial Surgery;2015-01
5. Holoprosencephaly: recommendations for diagnosis and management;Current Opinion in Pediatrics;2010-12
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