Changes in rural caregivers' health behaviors while supporting someone with cancer: A qualitative study

Author:

Johnston Elizabeth A.123ORCID,Collins Katelyn E.14ORCID,Vicario Jazmin N.1,Sibthorpe Chris1,Ireland Michael J.45,Goodwin Belinda C.156

Affiliation:

1. Cancer Council Queensland Fortitude Valley Queensland Australia

2. School of Exercise and Nutrition Sciences Queensland University of Technology Kelvin Grove Queensland Australia

3. Population Health Program QIMR Berghofer Medical Research Institute Herston Queensland Australia

4. School of Psychology and Wellbeing University of Southern Queensland Springfield Queensland Australia

5. Centre for Health Research University of Southern Queensland Springfield Queensland Australia

6. School of Population and Global Health University of Melbourne Melbourne Victoria Australia

Abstract

AbstractPurposeCaring for someone with cancer has a significant impact on usual routines, including caregivers' ability to maintain their own health and wellbeing. Caregivers living in rural areas face additional challenges in supporting someone with cancer, and little is known about the impact of caregiving on the health behaviors of rural caregivers. Therefore, this study explored how caring for someone with cancer affected rural caregivers' health behaviors.MethodsThrough semi‐structured interviews, 20 rural caregivers described changes in their health behaviors while caring for someone with cancer and the factors underlying these changes. Specific prompts were provided for diet, physical activity, alcohol, smoking, sleep, social connection and leisure, and accessing health care when needed. Interviews were audio‐recorded and transcribed verbatim. Content analysis was used to identify changes in health behaviors and the factors underlying these changes. The factors identified were mapped to the socioecological framework, identifying areas for intervention across multiple levels (individual, interpersonal, organizational, community, and policy).ResultsRural caregivers reported both positive and negative changes to their diet, physical activity, alcohol, and smoking. Sleep, social connection and leisure, and accessing health care were negatively impacted since becoming a caregiver.ConclusionsDesigning interventions to address rural caregivers' coping strategies, reduce carer burden and fatigue, improve access to cooking and exercise facilities and social support while away from home, reduce the need to travel for treatment, and increase the financial support available could yield widespread benefits for supporting the health and wellbeing of rural caregivers.

Publisher

Wiley

Reference49 articles.

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2. Australian Institute of Health and Welfare.Cancer in Australia 2019 summary.2019.https://www.aihw.gov.au/reports/cancer/cancer‐in‐australia‐2019/summary

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