Ultra‐rare sarcomas: A consensus paper from the Connective Tissue Oncology Society community of experts on the incidence threshold and the list of entities

Author:

Stacchiotti Silvia1ORCID,Frezza Anna Maria1ORCID,Blay Jean‐Yves2ORCID,Baldini Elizabeth H.3,Bonvalot Sylvie4ORCID,Bovée Judith V. M. G.5,Callegaro Dario6ORCID,Casali Paolo G.1,Chiang RuRu Chun‐ju78,Demetri George D.9,Demicco Elisabeth G.10,Desai Jayesh11,Eriksson Mikael12,Gelderblom Hans13,George Suzanne9,Gounder Mrinal M.1415,Gronchi Alessandro6,Gupta Abha1617ORCID,Haas Rick L.1819ORCID,Hayes‐Jardon Andrea20,Hohenberger Peter21,Jones Kevin B.22,Jones Robin L.23,Kasper Bernd21ORCID,Kawai Akira24ORCID,Kirsch David G.25ORCID,Kleinerman Eugene S.26,Le Cesne Axel27,Lim Jiwon28,Chirlaque López María Dolores29,Maestro Roberta30,Marcos‐Gragera Rafael31,Martin Broto Javier32,Matsuda Tomohiro33,Mir Olivier27,Patel Shreyaskumar R.34ORCID,Raut Chandrajit P.3536,Razak Albiruni R. A.17,Reed Damon R.37ORCID,Rutkowski Piotr38,Sanfilippo Roberta G.1,Sbaraglia Marta39,Schaefer Inga‐Marie40ORCID,Strauss Dirk C.23,Sundby Hall Kirsten41,Tap William D.1415,Thomas David M.42,Graaf Winette T. A.43,Houdt Winan J.44,Visser Otto45,Mehren Margaret46,Wagner Andrew J.9ORCID,Wilky Breelyn A.47,Won Young‐Joo28ORCID,Fletcher Christopher D. M.40,Dei Tos Angelo P.39,Trama Annalisa48

Affiliation:

1. Department of Medical Oncology National Cancer Institute of Milan Milan Italy

2. Leon Berard Center Claude Bernard University Lyon 1, UNICANCER Hospital Network Lyon France

3. Department of Radiation Oncology Dana‐Farber/Brigham and Women's Cancer Center Boston Massachusetts

4. Department of Surgical Oncology Curie Institute, University of Paris–Sciences and Letters Paris France

5. Department of Pathology Leiden University Medical Center Leiden Netherlands

6. Department of Surgery National Cancer Institute of Milan Milan Italy

7. Taiwan Cancer Registry Center Taipei Taiwan

8. Institute of Epidemiology and Preventive Medicine College of Public Health National Taiwan University Taipei Taiwan

9. Department of Medical Oncology Ludwig Center at Harvard Medical SchoolDana‐Farber Cancer Institute Boston Massachusetts

10. Department of Pathobiology and Laboratory Medicine University of Toronto/Mount Sinai Hospital Toronto Ontario Canada

11. Department of Medical Oncology Peter MacCallum Cancer Center Melbourne Victoria Australia

12. Department of Oncology Skane University Hospital and Lund University Lund Sweden

13. Department of Medical Oncology Leiden University Medical Center Leiden Netherlands

14. Department of Medicine Memorial Sloan Kettering Cancer Center New York New York

15. Weill Cornell Medical College New York New York

16. Division of Hematology/Oncology The Hospital for Sick Children Toronto Ontario Canada

17. Princess Margaret Cancer Center Toronto Ontario Canada

18. Department of Radiotherapy Netherlands Cancer Institute Amsterdam Netherlands

19. Department of Radiotherapy Leiden University Medical Center Amsterdam Netherlands

20. Department of Surgery the Royal Marsden National Health Service Foundation Trust London United Kingdom

21. Sarcoma Unit, Mannheim University Medical Center University of Heidelberg Mannheim Germany

22. Department of Orthopedics University of Utah Salt Lake City Utah

23. Sarcoma Unit Royal Marsden NHS Foundation Trust/Institute of Cancer Research London UK

24. Department of Musculoskeletal Oncology National Cancer Center Hospital Tokyo Japan

25. Department of Radiation Oncology Duke University Medical Center Durham North Carolina

26. Division of Pediatrics The University of Texas MD Anderson Cancer Center Houston Texas

27. Medical Oncology Gustave Roussy Institute Villejuif, Ile‐de‐France France

28. Division of Cancer Registration and Surveillance National Cancer Center, Ilsandong‐gu Goyang‐si Republic of Korea

29. Department of Epidemiology, Regional Health Council, Biomedical Research Institute of Murcia‐Arrixaca Murcia University Murcia Spain

30. Unit of Oncogenetics and Functional Oncogenomics Aviano IRCCS Oncology Referral Center Aviano Italy

31. Epidemiology Unit and Girona Cancer Registry, Oncology Coordination Plan Department of Health Autonomous Government of Catalonia Catalan Institute of Oncology Girona Spain

32. Medical Oncology Department University Hospital Virgen del Rocio Sevilla Spain

33. National Cancer Registry Section, Center for Cancer Registries, Center for Cancer Control and Information Services, National Cancer Center Tokyo Japan

34. Department of Sarcoma Medical Oncology The University of Texas MD Anderson Cancer Center Houston Texas

35. Department of Surgery Brigham and Women's Hospital Boston Massachusetts

36. Center for Sarcoma and Bone Oncology Dana‐Farber Cancer Institute Harvard Medical School Boston Massachusetts

37. Department of Interdisciplinary Cancer Management Moffitt Cancer Center Tampa Florida

38. Department of Soft Tissue/Bone Sarcoma and Melanoma Maria Sklodowska‐Curie National Research Institute of Oncology Warsaw Poland

39. Department of Pathology University Hospital of Padova Padova Italy

40. Department of Pathology Brigham and Women's HospitalHarvard Medical School Boston Massachusetts

41. Department of Oncology the Norwegian Radium HospitalOslo University Hospital Oslo Norway

42. Garvan Institute of Medical Research Sydney New South Wales Australia

43. Department of Medical Oncology Netherlands Cancer Institute Amsterdam Amsterdam Netherlands

44. Department of Surgical Oncology Netherlands Cancer Institute Amsterdam Netherlands

45. Department of Registration Netherlands Comprehensive Cancer Organization Utrecht Netherlands

46. Department of Hematology and Medical Oncology Fox Chase Cancer Center Philadelphia Pennsylvania

47. Department of Medicine University of Colorado Cancer Center Aurora Colorado

48. Evaluative Epidemiology Unit Department of Research National Cancer Institute of Milan Milan Italy

Publisher

Wiley

Subject

Cancer Research,Oncology

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