Children's Oncology Group 2023 blueprint for research: Cancer care delivery research

Author:

Parsons Susan K.1,Beauchemin Melissa P.2,Dupuis Lee3ORCID,Sugalski Aaron4,Wolfson Julie Anna5,Santacroce Sheila J.6,Marchak Jordan G.7,Sung Lillian8,Roth Michael E.9ORCID,

Affiliation:

1. Institute for Clinical Research and Health Policy Studies and the Division of Hematology/Oncology Tufts Medical Center Tufts University School of Medicine Boston Massachusetts USA

2. Columbia University School of Nursing CUIMC Minority/Underserved NCI Community Oncology Research Program, Herbert Irving Comprehensive Cancer Center Columbia University Irving Medical Center New York New York USA

3. Department of Pharmacy, The Hospital for Sick Children and Leslie Dan Faculty of Pharmacy University of Toronto Toronto Ontario Canada

4. University Health System Pediatric Blood and Cancer Center Division Hematology/Oncology, Joe R. and Teresa Lozano Long School of Medicine University of Texas Health San Antonio San Antonio Texas USA

5. Institute for Cancer Outcomes and Survivorship, Division of Pediatric Hematology‐Oncology University of Alabama at Birmingham Birmingham Alabama USA

6. School of Nursing and Lineberger Comprehensive Cancer Center The University of North Carolina at Chapel Hill Chapel Hill North Carolina USA

7. Aflac Cancer & Blood Disorders Center at Children's Healthcare of Atlanta Emory University School of Medicine Atlanta Georgia USA

8. Division of Haematology/Oncology The Hospital for Sick Children Toronto Ontario Canada

9. Division of Pediatrics The University of Texas MD Anderson Cancer Center Houston Texas USA

Abstract

AbstractThe National Cancer Institute (NCI) has a 40‐year history of initiatives to encourage the participation of community oncology sites into clinical trials research and clinical care. In 2014, the NCI re‐organized to form the NCI Community Oncology Research Program (NCORP) network across seven research bases, including the Children's Oncology Group (COG), and numerous community sites. The COG portfolio for Cancer Care Delivery Research (CCDR), mirroring the larger NCORP network, has included two studies addressing guideline congruence, as an important marker of quality cancer care, and another focusing on financial toxicity, addressing the pervasive problems of healthcare cost. CCDR is a cross‐cutting field that frequently examines intersectional aspects of healthcare delivery. With that in mind, we explicitly define domains of CCDR to propel our research agenda into the next phase of the NCORP CCDR program while acknowledging the complex and dynamic fields of clinical care, policy level decisions, research findings, and needs of communities served by the NCORP network that will inform the subsequent research questions. To ensure programmatic success, we will engage a broad interdisciplinary group of investigators and clinicians with expertise and dedication to community oncology and the populations they serve.

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology and Child Health

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