1. Developmental Neurosciences Research and Teaching Department, Dubowitz Neuromuscular Centre Great Ormond Street Institute of Child Health, University College London London UK
2. Great Ormond Street Hospital London UK
3. Institute I‐Motion Hôpital Armand Trousseau Paris France
4. Neurology Department Medical University of Warsaw Warsaw Poland
5. Population, Policy & Practice Department UCL Great Ormond Street Institute of Child Health London UK
6. NIHR Great Ormond Street Hospital Biomedical Research Centre London UK
7. Department of Paediatrics, MDUK Oxford Neuromuscular Centre University of Oxford Oxford UK
8. Department of Paediatrics, Neuromuscular Reference Center Centre Hospitalier Universitaire de Liège Liège Belgium
9. Genetics and Genomic Medicine Research and Teaching Department Great Ormond Street Institute of Child Health, University College London London UK