Decision‐Making Around COVID‐19 Public Health Measures and Implications for Self‐Care Activities: Experiences of Persons With Rheumatoid Arthritis

Abstract

ObjectiveWe aimed to advance understanding of how persons with rheumatoid arthritis (RA) experience decision‐making about adopting public health measures during the COVID‐19 pandemic.MethodsPersons living with RA partnered throughout this nested qualitative study. One‐to‐one semistructured telephone interviews were conducted with participants with RA between December 2020 and December 2021. They were strategically sampled from a randomized controlled trial that was underway to test a physical activity counseling intervention. Analysis was guided by reflexive thematic analysis.ResultsThirty‐nine participants (aged 26–86 years; 36 women) in British Columbia, Canada were interviewed. We developed three themes. Participants described how their decision‐making about public health measures related to 1) “upholding moral values of togetherness” because decisions were intertwined with moral values of neighborliness and reciprocity. Some adapted their self‐care routines to uphold these moral values; 2) “relational autonomy—supports and challenges,” because they sometimes felt supported and undermined in different relational settings (eg, by family, local community, or provincial government); and 3) “differing trust in information sources,” in which decisions were shaped by the degree of faith they had in various information sources, including their rheumatologists.ConclusionAcross themes, experiences of decision‐making about public health measures during the pandemic were embedded with moral concepts of solidarity, autonomy, and trust, with implications for how persons with RA chose and sustained their self‐care activities. Insights gained help sensitize researchers and clinicians to moral issues experienced by persons with RA, which may inform support for self‐care activities during and after the pandemic. image