Patient authorship of medical research publications: An evolution, revolution, and solution?

Author:

Woolley Karen L.12ORCID,Stones Simon R.3ORCID,Stephens Richard4ORCID,Bharadia Trishna5ORCID,Yamamoto Beverley678ORCID,Geissler Jan9,Yang Bella10ORCID,Oliver Jacqui3,Boughey Amanda3,Elliott Catherine3,Dormer Laura11ORCID,Walker Joanne11ORCID,Lobban Dawn3ORCID

Affiliation:

1. University of Queensland Brisbane Australia

2. University of the Sunshine Coast Sippy Downs Australia

3. Envision Pharma Group Wilmslow UK

4. Research Involvement and Engagement Stevenage UK

5. The Spark Global Buckinghamshire UK

6. Executive Vice President of International Affairs Osaka University Osaka Japan

7. HAEJ Registered NPO, Hyogo Prefecture Japan

8. HAEi Registered Charity Fairfax USA

9. Patvocates Munich Germany

10. Envision Pharma Group Philadelphia USA

11. Becaris Publishing Royston UK

Abstract

Key points Patient authorship is a new topic in medical publishing, with the number of patient‐authored publications growing rapidly. Publication stakeholders (e.g., editors, publishers, funders, researchers) should be aware of the legitimacy of patient authorship. Practical actions can be taken by different publication stakeholders to encourage and support patient authorship—ethically and effectively. Patient authorship can contribute to enhancing diversity, equity, and inclusion in medical publishing. Research on patient authorship could be strengthened with consensus on publication tagging practices (e.g., affiliation terms) and the use of artificial intelligence. A plain language summary of this article and the GRIPP2 form for reporting patient involvement are available as supplementary information.

Publisher

Wiley

Reference52 articles.

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4. Chatfield C. Cook S. Ladher N. Loder E. Hurley R. Richards M. Schroter S. &The BMJ Gender Diversity Group. (2021).Ten steps to gender equity: The BMJ's resolutions.https://blogs.bmj.com/bmj/2021/03/08/ten-steps-to-gender-equity-the-bmjs-resolutions/

5. Coalition for Diversity and Inclusion in Scholarly Communications (C4DISC). (2021).Joint statement on principles.https://c4disc.org/joint-statement-of-principles/

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