Whose Odyssey Is It? Family-Centered Care in the Genomic Era
Author:
Publisher
Wiley
Subject
Health Policy,Philosophy,Issues, ethics and legal aspects,Health(social science)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1002/hast.879/fullpdf
Reference10 articles.
1. Ending a Diagnostic Odyssey: Family Education, Counseling, and Response to Eventual Diagnosis;Basel;Pediatrics Clinics of North America,2017
2. Practice Parameter: Evaluation of the Child with Global Developmental Delay: Report of the Quality Standards Subcommittee of the American Academy of Neurology and The Practice Committee of the Child Neurology Society;Shevell;Neurology,2003
3. Clinical Genetics Evaluation in Identifying the Etiology of Autism Spectrum Disorders: 2013 Guideline Revisions;Schaefer;Genetics in Medicine,2013
4. American College of Medical Genetics and Genomics Guideline on the Cytogenetic Evaluation of the Individual with Developmental Delay or Mental Retardation;Shaffer;Genetics in Medicine,2005
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2. “I Have Fought for so Many Things”: Disadvantaged families’ Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing;AJOB Empirical Bioethics;2023-05-10
3. The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey;Physical & Occupational Therapy In Pediatrics;2022-10-30
4. The Therapeutic Odyssey: Positioning Genomic Sequencing in the Search for a Child’s Best Possible Life;AJOB Empirical Bioethics;2021-04-12
5. Genomic Testing for Human Health and Disease Across the Life Cycle: Applications and Ethical, Legal, and Social Challenges;Frontiers in Public Health;2019-03-11
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