Walking the talk for dementia: A unique immersive, embodied, and multi‐experiential initiative

Author:

Aguzzoli Peres Fernando123,Haas Aline Nogueira124,Martha Angga Dwi5,Chan Melissa126,Steele Michelle7,Ferretti Maria Teresa8,Ngcobo Ntokozo N.129,Ilinca Stefania10,Domínguez‐Vivero Clara1211,Leroi Iracema1212,Sajnani Nisha13,Zimmer Eduardo R.141516,Kornhuber Alex12,Kalache Alexandre17,Holtzhausen Berrie18,Tristão‐Pereira Catarina19,Dupont Charlèss2021,Cohen Dan22,de Jong David23,Facal David24,O'Sullivan Desmond3,Mateus Elaine25,Roso Enzo26,Estrop Evon27,Gamba Giulia28,San Martin Elexpe Gustavo28,Ulises Diaz Hernández Hector29,Quaid Helena30,Govia Ishtar31,Barbosa João3,García del Moral Joaquina32,Miller Johnny33,García García José Antonio32,Quaid Kevin30,Navarro Laura34,García Laura Zúñiga32,Waters Laureen35,Molete Lebo3637,Godoy Maria Eugenia3,Sigauke Maureen38,de Ataide Schulte Max William3,Estrop Peter27,San Martin Elexpe Cardoso Priscilla28,Perez Randall39,Patterson Rianna40,Chakrabarti Ronika41,Wong Ruth42,Marsillas Sara43,Lowe Shontonese3,Rego Taida Sánchez29,Farombi Temitope44,Montgomery Theresa3,in ‘t Veen Ton45,Yanni Valli1,Weidner Wendy46,Ibanez Agustin12347ORCID

Affiliation:

1. Global Brain Health Institute (GBHI) University of California San Francisco (UCSF) San Francisco USA

2. Trinity College Dublin the University of Dublin College Green Dublin 2 Ireland

3. Latin American Brain Health Institute (BrainLat) Universidad Adolfo Ibañez Las Condes Chile

4. Department of Physical Education Physiotherapy and Dance Universidade Federal do Rio Grande do Sul Porto Alegre Brasil

5. Atlantic Fellow for Health Equity in Southeast Asia the Equity Initiative Bangkok Thailand

6. Institute for Research on Socio‐Economic Inequality University of Luxembourg Esch‐sur‐Alzette Luxembourg

7. Atlantic Fellows for Social Equity, Australia, New Zealand and the Pacific University of Melbourne Melbourne Melbourne Austrália

8. Women's Brain Project, Guntershausen Guntershausen Switzerland

9. Department of Psychiatry School of Clinical Medicine University of KwaZulu‐Natal Durban KwaZulu‐Natal South Africa

10. World Health Organization, Regional Office for Europe Copenhagen Denmark

11. Servicio Galego de Saúde Galicia Spain

12. School of Medicine Trinity College Dublin the University of Dublin College Green Dublin 2 Ireland

13. Program in Drama Therapy, Jameel Arts & Health Lab New York University New York New York USA

14. Graduate Program in Biological Sciences: Biochemistry (PPGBioq) and Pharmacology and Therapeutics (PPFT) Department of Pharmacology Universidade Federal do Rio Grande do Sul Porto Alegre Brazil

15. The McGill University Research Centre for Studies in Aging McGill University Montreal Canada

16. Brain Institute of Rio Grande do Sul ‐ Pontifícia Universidade Católica do Rio Grande do Sul Porto Alegre Brazil

17. International Longevity Center Brazil Rio de Janeiro RJ Brazil

18. Alzheimer Dementia Namibia Windhoek Namibia

19. Spanish National Center for Cardiovascular Research Madrid Spain

20. VUB‐UGhent End‐of‐life Care Research Group Vrije Universiteit Brussel (VUB) Brussel Belgium

21. Department of Family Medicine and Chronic Care Vrije Universiteit Brussel (VUB) Brussel Belgium

22. Right to Music New York USA

23. DA‐RE Health Innovation Heerenveen Friesland Netherlands

24. Departamento de Psicoloxía Evolutiva e da Educación IDIS, Universidade de Santiago de Compostela Santiago de Compostela Spain

25. Febraz ‐ Brazilian Federation of Alzheimer's Associations São Paulo SP Brasil

26. Università degli Studi di Firenze Florence Italy

27. Voices for Hope Dementia Singapore Singapore Singapore

28. Associação Crônicos do Dia a Dia (CDD) São Paulo SP Brasil

29. Federación Alzheimer Galicia Santiago de Compostela Spain

30. Lewy Body Ireland Lloyd Building – Trinity College Dublin the University of Dublin College Green Dublin 2 Ireland

31. Caribbean Institute for Health Research The University of the West Indies Kingston 7 Jamaica

32. Confederación Española de Alzheimer (CEAFA) Pamplona Navarra Spain

33. London School of Economics London UK

34. Health Research Institute of Santiago de Compostela (IDIS) Pamplona Spain

35. Voices of Alzheimer Chicago Illinois USA

36. PHELA Foundation Johannesburg South Africa

37. Tekano Cape Town South Africa

38. Community Hope Trust, 361B/7 ‐ Mbizo Kwekwe Midlands Zimbabwe

39. Hospital Dr. R.A. Calderón Guardia San José Costa Rica

40. Dominica Dementia Foundation Dominica Dominica

41. Trinity Business School Trinity College Dublin the University of Dublin College Green Dublin 2 Ireland

42. Dementia Singapore Singapore Singapore

43. Matia Institute of Gerontology Madrid Spain

44. Chief Tony Anenih Geriatric Center University College Hospital Ibadan Oyo Nigeria

45. TimeSteps, The Netherlands, Europalaan 100 Utrecht The Netherlands

46. Alzheimer's Disease International London UK

47. Cognitive Neuroscience Center (CNC) Universidad de San Andrés and CONICET Calle Vito Dumas 284 Buenos Aires Argentina

Abstract

AbstractCoping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe “Walking the Talk for Dementia,” an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4‐day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2‐day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi‐experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.

Funder

Fondo de Fomento al Desarrollo Científico y Tecnológico

Fogarty International Center

Alzheimer's Association

Publisher

Wiley

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