Health professionals’ practice for young people with, or at risk of, Li–Fraumeni syndrome: An Australasian survey-Reference-Cited by-同舟云学术

Health professionals’ practice for young people with, or at risk of, Li–Fraumeni syndrome: An Australasian survey

Published:2019-12-23 Issue:5 Volume:29 Page:737-747
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Jrnl of Gene Coun

Author:

Forbes Shepherd Rowan¹²³,Keogh Louise A.⁴,Werner‐Lin Allison⁵,Delatycki Martin B.³⁶⁷,Forrest Laura E.¹²

Affiliation:

1. Parkville Familial Cancer CentrePeter MacCallum Cancer Centre Melbourne Vic. Australia

2. Sir Peter MacCallum Department of Oncology The University of Melbourne Melbourne Vic. Australia

3. Bruce Lefroy Centre for Genetic Health Research Murdoch Children's Research Institute Parkville Vic. Australia

4. Melbourne School of Population and Global Health The University of Melbourne Melbourne Vic. Australia

5. School of Social Policy and Practice The University of Pennsylvania Philadelphia PA USA

6. Department of Paediatrics The University of Melbourne Melbourne Vic. Australia

7. Victorian Clinical Genetics Service Parkville Vic. Australia

Funder

National Breast Cancer Foundation

Publisher

Wiley

Subject

Genetics(clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1199

Reference35 articles.

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3. Genetic counselling of young women with breast cancer for Li–Fraumeni syndrome: A nationwide survey on the experiences and attitudes of genetics professionals;Bakhuizen J. J.;Familial Cancer,2018

4. Baseline surveillance in Li‐Fraumeni syndrome using whole‐body magnetic resonance imaging: A meta‐analysis;Ballinger M. L.;The Journal of the American Medical Association Oncology,2017

5. Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

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1. How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “ With Li‐Fraumeni syndrome, it’s just an intermission ”;Psycho-Oncology;2023-01-03

2. Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body;Social Science & Medicine;2022-05

3. Psychosocial interventions and needs among individuals and families with Li‐Fraumeni syndrome: A scoping review;Clinical Genetics;2021-08-23

4. Psychosocial Aspects of Childhood Cancer Genetics;The Hereditary Basis of Childhood Cancer;2021