Neurodiversity and the Accessible University: Exploring Organizational Barriers, Access Labor and Opportunities for Change

Author:

Borsotti Valeria1ORCID,Begel Andrew2ORCID,Bjørn Pernille1ORCID

Affiliation:

1. University of Copenhagen, Copenhagen, Denmark

2. Carnegie Mellon University, Pittsburgh, PA, USA

Abstract

The access needs of neurodivergent individuals in organizational settings are many and varied - and so are their everyday contributions to the creation of collective access. In this study, we contribute to the growing body of CSCW research on accessibility and investigate the invisible access labor of neurodivergent students in three computer science institutions. We use an exploratory, multi-stakeholder approach, combining semi-structured interviews (n=26) and document analysis. We adopted a broad definition of neurodiversity: our study included individuals with autism, dyslexia, ADHD, cyclothymia and individuals with neurological conditions that developed as a result of illness, trauma or injury. Our findings show that neurodivergent students face a number of structural and attitudinal barriers to access in the educational environment and within the disability support system. We identified barriers in three main areas: (i) assistive technology access barriers, (ii) cognitive and physical access barriers, and (iii) social access barriers. We examined how stigma, individualized understandings of disability and intersectional disadvantage shape organizational practices and explored how students are creatively improving collective access through micro-interventions, although these efforts are largely invisible. We then draw on our findings to identify opportunities for change. We propose access grafting as a bottom-up approach to rethinking and reorienting organizational strategies to improve equitable access.

Publisher

Association for Computing Machinery (ACM)

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