“Falling between the cracks”: Experiences of Black dementia caregivers navigating U.S. health systems

Author:

Alexander Karah1,Oliver Sloan2,Bennett Stephanie G.3,Henry Jenyl4,Hepburn Kenneth1,Clevenger Carolyn1ORCID,Epps Fayron1

Affiliation:

1. Nell Hodgson Woodruff School of Nursing Emory University Atlanta Georgia USA

2. Rollins School of Public Health Emory University Atlanta Georgia USA

3. Emory Healthcare Atlanta Georgia USA

4. Public Health Department Grand Canyon University Phoenix Arizona USA

Funder

National Institute on Aging

Retirement Research Foundation

Publisher

Wiley

Subject

Geriatrics and Gerontology

Reference28 articles.

1. Caregiver health literacy predicting healthcare communication and system navigation difficulty;Fields B;APA,2018

2. Health Literacy Associations Between Hispanic Elderly Patients and Their Caregivers

3. Community resource referral needs among African American dementia caregivers in an urban community: a qualitative study

4. Barriers to Communication With a Healthcare Provider and Health Literacy About Incontinence Among Informal Caregivers of Individuals With Dementia

5. Unpublished tabulations based on data from the National 5% Sample Medicare fee‐for‐service beneficiaries for 2014. Prepared under contract by Avalere Health to the Alzheimer's Association 2016.

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