Implementing well‐being in the management of psoriasis: An expert recommendation

Author:

Sommer Rachel1ORCID,Mrowietz Ulrich2ORCID,Gaarn Du Jardin Kristian3,Kasujee Ismail3,Martini Elisa4,Daudén Esteban5ORCID,Fabbrocini Gabriella6,Zink Alexander78ORCID,Griffiths Christopher E. M.910ORCID,Augustin Matthias1ORCID

Affiliation:

1. Institute for Health Services Research in Dermatology and Nursing (IVDP) University Medical Center Hamburg‐Eppendorf (UKE) Hamburg Germany

2. Psoriasis‐Center, Department of Dermatology University Medical Center Schleswig‐Holstein, Campus Kiel Kiel Germany

3. Almirall R&D Barcelona Spain

4. IFPA Stockholm Sweden

5. La Princesa University Hospital Instituto de Investigación Sanitaria La Princesa (IIS‐IP) Madrid Spain

6. Section of Dermatology, Department of Clinical, Medicine and Surgery University of Naples Federico II Naples Italy

7. Department of Dermatology and Allergy, School of Medicine Technical University of Munich Munich Germany

8. Division of Dermatology and Venereology, Department of Medicine Solna Karolinska Institutet Stockholm Germany

9. The Dermatology Centre, NIHR Manchester Biomedical Research Centre, Salford Royal Hospital The University of Manchester Manchester UK

10. Department of Dermatology, King's College Hospital King's College London London UK

Abstract

AbstractPsoriasis causes detriment in a person's physical, mental and social health which impairs their quality of life (QoL). However, the current psoriasis management may not adequately address all relevant health domains. Since the goal of healthcare is to restore or maintain health, health outcomes should include all areas of the patient's overall health. Life satisfaction, QoL and patient well‐being are essential to a comprehensive approach to the disease. With the inclusion of more people‐centred policies, care of patients with psoriasis should evolve towards a holistic and integrated assessment of the disease impact, including subjective measures of well‐being in order to encompass all aspects of health. The main objective of this expert review is to give the concept of well‐being a place as an entity within the holistic therapeutic approach for patients with psoriasis. Identifying and defining common goals beyond the skin with the patient and testing them throughout the course of treatment will benefit and enhance treatment success. We propose a series of recommendations for application in clinical practice, providing tangible clinical guidance for implementing well‐being in the management of psoriasis. Among the recommendations are the need to initially listen to the patient, to know their level of empowerment or what they want to achieve, their preferences in decision making, the evaluation of not only the physical but also the emotional impact of the disease (well‐being), the definition of the aspects that can generate a cumulative deterioration of the disease throughout life, and a continuous assessment of the patient's preferences with the opinion of the expert clinician and the integration of the knowledge of external clinical evidence.

Publisher

Wiley

Subject

Infectious Diseases,Dermatology

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