Identified unmet needs and proposed solutions in mild‐to‐moderate haemophilia: A summary of opinions from a roundtable of haemophilia experts

Author:

Walsh Christopher1,Boggio Lisa2,Brown‐Jones Lanette3,Miller Rachel4,Hawk Sarah5,Savage Brittany3,Hansen Kerry6,Molter Don3,Baumann Kim6,Dunn Spencer7,Skinner Mark W.8ORCID,Haugstad Kimberly9,Johnson Stormy10,Davenport Tammy11,Bradbury Margaret9,Witkop Michelle12ORCID,Saad Hossam13,Cooper David L.13

Affiliation:

1. Icahn School of Medicine at Mount Sinai New York NY USA

2. Rush Hemophilia and Thrombophilia Center Chicago IL USA

3. Indiana Hemophilia and Thrombosis Center Indianapolis IN USA

4. Children’s Minnesota Minneapolis MN USA

5. Oklahoma Center for Bleeding Disorders Oklahoma City OK USA

6. Center for Bleeding and Clotting Disorders M Health Fairview Minneapolis MN USA

7. Center for Comprehensive Care and Diagnosis of Inherited Bleeding Disorders Orange CA USA

8. Institute for Policy Advancement Ltd Washington DC USA

9. Hemophilia Federation of America Washington DC USA

10. Women’s Bleeding Disorder Coalition McDonough GA USA

11. Women’s Bleeding Disorder Coalition Kingwood TX USA

12. National Hemophilia Foundation New York NY USA

13. Novo Nordisk Inc. Plainsboro NJ USA

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Reference29 articles.

1. Diagnosis and care of patients with mild haemophilia: practical recommendations for clinical management;Benson G;Blood Transfus,2018

2. Mild hemophilia A;Franchini M;J Thromb Haemost,2010

3. High incidence of ankle arthropathy in mild and moderate haemophilia A;Ling M;Thromb Haemost,2011

4. A cross‐sectional study of bleeding phenotype in haemophilia A carriers;Paroskie A;Br J Haematol,2015

5. Severe and moderate haemophilia A and B in US females;Di Michele DM;Haemophilia,2014

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