Health‐related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors—Results from the HAVEN 2 study-Reference-Cited by-同舟云学术

Health‐related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors—Results from the HAVEN 2 study

Published:2020-10-21 Issue:6 Volume:26 Page:1009-1018
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Mancuso Maria Elisa¹,Mahlangu Johnny²^ORCID,Sidonio Robert³,Trask Peter⁴,Uguen Marianne⁵,Chang Tiffany⁴,Shima Midori⁶^ORCID,Young Guy⁷^ORCID,Oldenburg Johannes⁸^ORCID,Mackensen Sylvia⁹

Affiliation:

1. Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico Angelo Bianchi Bonomi Hemophilia and Thrombosis Center Milan Italy

2. Faculty of Health Sciences University of the Witwatersrand and NHLS Johannesburg South Africa

3. Emory University and Children's Healthcare of Atlanta Atlanta GA USA

4. Genentech, Inc. South San Francisco CA USA

5. F. Hoffmann‐La Roche Ltd Basel Switzerland

6. Nara Medical University Kashihara Japan

7. Children's Hospital Los Angeles University of Southern California Keck School of Medicine Los Angeles CA USA

8. University of Bonn Bonn Germany

9. Department of Medical Psychology University Medical Centre Hamburg‐Eppendorf Hamburg Germany

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14183

Reference37 articles.

1. Burden of Disease Resulting from Hemophilia in the U.S.

2. From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies

Cited by 18 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Emicizumab and unmet needs of patients with hemophilia a who are managed with replacement therapies;Expert Review of Hematology;2024-09-12

2. How much prophylaxis is enough in haemophilia?;Haemophilia;2024-03-24

3. Non-clotting factor therapies for preventing bleeds in people with congenital hemophilia A or B;Cochrane Database of Systematic Reviews;2024-02-27

4. Knowledge gaps in health‐related quality of life research performed in children with bleeding disorders – A scoping review;Haemophilia;2024-02-05

5. Eficacia y seguridad de la profilaxis con emicizumab en la hemofilia A: estudio de 13 pacientes;Medicina Clínica;2024-02