Epilepsy‐related stigma and attitudes: Systematic review of screening instruments and interventions ‐ Report by the International League Against Epilepsy Task Force on Stigma in Epilepsy

Author:

Austin Joan K.1,Birbeck Gretchen23,Parko Karen45,Kwon Churl‐Su6ORCID,Fernandes Paula T.7,Braga Patricia8ORCID,Fiest Kirsten M.9,Ali Amza10,Cross J. Helen11ORCID,Boer Hanneke,Dua Tarun12,Haut Sheryl R.13,Jacoby Ann14,Lorenzetti Diane L.15,Mifsud Janet16,Moshé Solomon L.17ORCID,Tripathi Manjari18ORCID,Wiebe Samuel19ORCID,Jette Nathalie20ORCID

Affiliation:

1. Indiana University School of Nursing Indianapolis Indiana USA

2. Epilepsy Division University of Rochester Rochester New York USA

3. Epilepsy Care Team Chikankata Hospital Mazabuka Zambia

4. Department of Neurology University of California at San Francisco San Francisco California USA

5. Epilepsy Center San Francisco VA Medical Center San Francisco California USA

6. Departments of Neurosurgery and Neurology Icahn School of Medicine at Mount Sinai New York New York USA

7. Department of Sport Science Faculty of Physical Education UNICAMP Campinas Brazil

8. Institute of Neurology Facultad de Medicina Universidad de la República Montevideo Uruguay

9. Department of Critical Care Medicine and Department of Community Health Sciences Hotchkiss Brain Institute O’Brien Institute for Public Health University of Calgary Calgary Alberta Canada

10. Kingston Public Hospital and University of the West Indies Kingston Jamaica

11. Developmental Neurosciences Programme UCL‐Great Ormond Street Institute of Child Health London UK

12. Department of Mental Health and Substance Abuse World Health Organization Geneva Switzerland

13. Saul R. Korey Department of Neurology Albert Einstein College of Medicine and Montefiore Medical Center Bronx New York USA

14. Department of Public Health and Policy University of Liverpool Liverpool UK

15. Department of Community Health Sciences University of Calgary and Heath Sciences Library University of Calgary Calgary Alberta Canada

16. Department of Clinical Pharmacology and Therapeutics Faculty of Medicine and Surgery University of Malta Msida Malta

17. Department of Pediatrics and Dominick P. Purpura Department of Neuroscience Albert Einstein College of Medicine Bronx New York USA

18. Department of Neurology All India Institute of Medical Sciences New Delhi India

19. Department of Clinical Neurosciences and Department of Community Health Sciences Hotchkiss Brain Institute O’Brien Institute for Public Health University of Calgary Calgary Alberta Canada

20. Departments of Neurology and Population Health Sciences & Policy Icahn School of Medicine at Mount Sinai New York New York USA

Publisher

Wiley

Subject

Neurology (clinical),Neurology

Reference83 articles.

1. Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes towards persons living with epilepsy ‐ Report from the International League Against Epilepsy Task Force on stigma in epilepsy;Kwon CS;Epilepsia,2021

2. Epilepsy across the spectrum: Promoting health and understanding.

3. Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

4. Quality criteria were proposed for measurement properties of health status questionnaires

5. https://www.nhlbi.nih.gov/health‐topics/study‐quality‐assessment‐tools

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