1. Hôpital Saint Louis Paris France
2. Patients Priority European Market Maintenance Assessment Fontenay Sous Bois France
3. Amryt Pharma Boulogne Billancourt France
4. Hôpital Henri Mondor Créteil France
5. Debra France Marseille France
6. Department of Dermatology, Necker Enfants‐Malades Hospital MAGEC Referal Center of Rare Skin Diseases Paris France