Sexual and reproductive health education for patients with myelomeningocele

Author:

Lutz Carley M.1ORCID,Onwuka Amanda1,Fuchs Molly E.2,Carey Margaret3,Griffey Judy3,Hobensack Victoria L.3,Sharpe Scandinaro Joanne3,McCracken Kate4

Affiliation:

1. Center for Surgical Outcomes Research Center for Innovation in Pediatric Practice, The Abigail Wexner Research Institute, Nationwide Children's Hospital Columbus OH USA

2. Department of Urology Nationwide Children's Hospital Columbus OH USA

3. Myelomeningocele Clinic Nationwide Children's Hospital Columbus OH USA

4. Department of Pediatric and Adolescent Gynecology Nationwide Children's Hospital Columbus OH USA

Abstract

AbstractAimTo evaluate the sexual and reproductive health education received by patients with myelomeningocele, the most severe form of spina bifida.MethodA survey designed to assess the sexual and reproductive health education given by a healthcare provider to patients with myelomeningocele was offered to all English‐speaking patients aged 12 years or older with a myelomeningocele clinic visit.ResultsIn total, 67 surveys were completed. Menstruation and menstrual management were discussed at a rate of 85% in females. Few patients had discussions with a provider about fertility (42%), sexuality (37%), risk of sexually transmitted infections (45%), or had a relationship with a reproductive healthcare provider (54%). Differences by sex were observed for contraceptive education. The rate of discussions increased with age. A total of 67% of female patients and 33% of male patients requested a referral to a reproductive healthcare provider.InterpretationSexual and reproductive health education is part of comprehensive care for all patients and those with disabilities should not be excluded. The lack of consistent education received by patients supports the need for increased attention to this topic. We encourage multidisciplinary myelomeningocele clinics to establish a process for delivering complete and patient‐specific sexual and reproductive health education.

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

Reference33 articles.

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2. Spina bifida

3. Centers for Disease Control and Prevention.Health Issues & Treatments for Spina Bifida. Centers for Disease Control and Prevention.https://www.cdc.gov/ncbddd/spinabifida/treatment.html. Published2020. Updated Septemeber 3 2020. Accessed February 10 2021.

4. The impact of neurogenic bladder bowel dysfunction in the sexuality of female spina bifida patients

5. Meeting the Reproductive Needs of Female Adolescents With Neurodevelopmental Disabilities

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