Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project-Reference-Cited by-同舟云学术

Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project

Published:2024-04-29 Issue:4 Volume:30 Page:1071-1076
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Nguyen Ngoc Anh Thu¹²^ORCID,Auquier Pascal¹²³,Beltran Anzola Any¹²,Harroche Annie⁴^ORCID,Huguenin Yoann⁵,Hochart Audrey⁶,Meunier Sandrine⁷^ORCID,Frotscher Birgit⁸,Nguyen Philippe⁹^ORCID,Schneider Pascale¹⁰,Berger Claire¹¹,Lebreton Aurélien¹²^ORCID,Vanderbecken Stéphane¹³,De Raucourt Emmanuelle¹⁴,D'Oiron Roseline³¹⁵^ORCID,Oudot‐Challard Caroline¹⁶,Baumstarck Karine¹²³,Boucekine Mohamed¹²³,Tabélé Clémence¹²³,Rosso‐Delsemme Natacha¹⁷¹⁸,Sannié Thomas¹⁹^ORCID,Giraud Nicolas¹⁹,Chambost Hervé³¹⁸,Resseguier Noémie¹²,

Affiliation:

1. CEReSS – Health Services and Quality of Life Research, Research Unit 3279 Aix‐Marseille University Marseille France

2. Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP‐HM) Marseille France

3. FranceCoag Network Marseille France

4. University Hospital of Paris (AP‐HP), Haemophilia Treatment Centre Hospital Necker Paris France

5. University Hospital of Bordeaux Haemophilia Treatment Centre Bordeaux France

6. University Hospital of Lille Hematology Transfusion Lille France

7. Hospices Civils de Lyon Haemophilia Treatment Centre and French Reference Centre on Haemophilia University Hospital Bron France

8. University Hospital of Nancy Haemophilia Treatment Centre Nancy France

9. University Hospital of Reims Haemophilia Treatment Centre Reims France

10. University Hospital of Rouen Haemophilia Treatment Centre Rouen France

11. University Hospital of Saint‐Etienne Haemophilia Treatment Centre Saint‐Etienne France

12. University Hospital of Clermont‐Ferrand Haemophilia Treatment Centre Clermont‐Ferrand France

13. University Hospital of Reunion Haemophilia Treatment Centre Reunion Island France

14. Hospital of Versailles Haemophilia Treatment Centre Versailles France

15. University Hospital of Paris (AP‐HP) Haemophilia Treatment Centre Hospital Bicêtre Paris France

16. University Hospital of Toulouse Haemophilia Treatment Centre Toulouse France

17. Laboratory of Clinical Psychopathology; language and subjectivity, Research Unit EA 3278 Aix‐Marseille University Aix‐en‐Provence France

18. University Hospital of Marseille (AP‐HM) Haemophilia Treatment Centre Children Hospital La Timone Marseille France

19. French Association for People with Haemophilia (AFH) Paris France

Publisher

Wiley

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.15023

Reference10 articles.

1. WFH Guidelines for the Management of Hemophilia, 3rd edition

2. The invisible child: Sibling experiences of growing up with a brother with severe haemophilia-An interpretative phenomenological analysis

3. Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): A multicentric French national observational cross‐sectional study based on the FranceCoag registry

4. Conceptualizing and testing random indirect effects and moderated mediation in multilevel models: New procedures and recommendations.