Enhancing haemophilia care through registries-Reference-Cited by-同舟云学术

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Enhancing haemophilia care through registries

Published:2014-04-25 Issue: Volume:20 Page:121-129
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Dolan G.¹,Makris M.²,Bolton-Maggs P. H. B.³,Rowell J. A.⁴

Affiliation:

1. Nottingham University Hospitals; Nottingham UK

2. Department of Cardiovascular Science; University of Sheffield and Sheffield Haemophilia and Thrombosis Centre; Sheffield UK

3. Serious Hazards of Transfusion Office; Manchester Blood Centre; Manchester UK

4. Haemophilia Centre; Royal Brisbane and Women's Hospital; Brisbane Australia

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.12406/fullpdf

Reference18 articles.

1. Evatt BL World Federation of Hemophilia guide to developing a national patient registry www1.wfh.org/publication/files/pdf-1288.pdf

2. European principles of haemophilia care;Colvin;Haemophilia,2008

3. Coagulation factor activity and clinical bleeding severity in rare bleeding disorders: results from the European network of Rare Bleeding disorders;Peyvandi;J Thromb Haemost,2012

4. The risk of variant Creutzfeldt-Jakob disease among UK patients with bleeding disorders, known to have received potentially contaminated plasma products;Zaman;Haemophilia,2011

5. Mortality from liver cancer and liver disease in haemophilic men and boys in UK given blood products contaminated with hepatitis C. UK Haemophilia Centre Directors’ Organisation;Darby;Lancet,1997

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1. Key Drivers of Coagulation Factor Use in Von Willebrand Disease During Hospitalization: An Overview of the French BERHLINGO Cohort;Clinical Drug Investigation;2023-11-30

2. Key challenges for patient registries – A report from the 1^st workshop of the EHC Think Tank Workstream on Registries;The Journal of Haemophilia Practice;2022-01-01

3. Engaging rural communities in cancer prevention and control research: Development and preliminary insights from a community‐based research registry;Cancer Medicine;2021-10-14

4. The road to hell is paved with good intentions: the experience of applying for national data for linkage and suggestions for improvement;BMJ Open;2021-08

5. The German Hemophilia Registry: Growing with Its Tasks;Journal of Clinical Medicine;2020-10-24

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