1. Institute of Health and Care Sciences, Sahlgrenska Academy University of Gothenburg Gothenburg Sweden
2. Centre for Person‐Centred Care (GPCC) University of Gothenburg Gothenburg Sweden
3. Queen Silvia Children's Hospital Sahlgrenska University Hospital Gothenburg Sweden
4. Palliative Centre Sahlgrenska University Hospital Gothenburg Sweden
5. Institute of Medicine, Sahlgrenska Academy University of Gothenburg Gothenburg Sweden
6. Department of Neurology Sahlgrenska University Hospital Gothenburg Sweden
7. Department of Paediatrics, Institute of Clinical Sciences, Sahlgrenska Academy University of Gothenburg Gothenburg Sweden
8. Department of Paediatrics Region Jönköping County Jönköping Sweden
9. Department of Clinical and Experimental Medicine Linköping University Linköping Sweden
10. Department of Nursing Science Sophiahemmet University Stockholm Sweden