The experiences of individuals who have had gestational diabetes: A qualitative exploration

Author:

Roesler Anna1ORCID,Butten Kaley1,Taylor Pennie1,Morrison Melinda2,Varnfield Marlien1,Holmes‐Truscott Elizabeth34ORCID

Affiliation:

1. The Australian e‐Health Research Centre CSIRO Herston Queensland Australia

2. Diabetes Australia Canberra Australian Capital Territory Australia

3. The Australian Centre for Behavioural Research in Diabetes Carlton Victoria Australia

4. Institute for Health Transformation Deakin University Geelong Victoria Australia

Abstract

AbstractAimTo qualitatively explore the experiences of individuals with Gestational Diabetes Mellitus (GDM) in Australia, and to recognise opportunities for leveraging digital health to enhance the support of GDM management.MethodA cross sectional online survey assessed the experiences of individuals with GDM, the healthcare system and their digital health usage. Respondents (recruited via a national diabetes registry or social media) were adults receiving GDM care within Australia in the last 5 years, who responded to any of three open‐ended questions (n = 815) exploring positive, negative and other GDM experiences. Thematic analysis was utilised, and themes were mapped to the socio‐ecological systems framework.ResultsAt a system level, themes related to (1) accessibility of care including the value of digital health and the inflexible or inconsistent perception of the (2) implementation of guidelines. At an interpersonal level, themes covered the need for adequate (3) health information provision, and (4) supportive care, as well as highlighting (5) experiences of stigma including a desire for greater awareness of GDM. Individual‐level themes included: (6) differential barriers to accessing care; (7) negative emotional burden; (8) internalisation of stigma; (9) dietary freedom and social impact and (10) opportunity for change derived from having GDM.ConclusionFindings suggest a demand for more supportive, person‐centred GDM care, improved information provision and individualised implementation of clinical guidelines. Such mechanisms may support reduced barriers to accessing care or negative psychosocial impacts of GDM. Though not central to the identified experiences, digital health tools may help address the need for optimised GDM care.

Publisher

Wiley

Reference30 articles.

1. IDF diabetes atlas: estimation of global and regional gestational diabetes mellitus prevalence for 2021 by International Association of Diabetes in Pregnancy Study Group’s Criteria;Wang H;Diabetes Res and Clin Pract,2022

2. Australian Institute of Health and Welfare. Australia's mothers and babies. AIHW Australian Government.2022https://www.aihw.gov.au/reports/mothers‐babies/australias‐mothers‐babies

3. Gestational diabetes mellitus: A pragmatic approach to diagnosis and management

4. Women’s experiences of a diagnosis of gestational diabetes mellitus: a systematic review

5. An interpretive review of women's experiences of gestational diabetes mellitus: Proposing a framework to enhance midwifery assessment

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